Alzheimer's disease: research, prevention and living with it.

Monday, October 28, 2013 - 6:39pm

Alzheimer’s Disease dementia effects five million people in the U.S. and as baby boomers age that number is expected to grow. But so far there’s been little success in treating the disease and slowing its debilitating progress. Now though, researchers are taking a different approach and looking at prevention. With the help of a $33 million grant by the Federal Government, neuroscientists will test a drug on at-risk populations before they get Alzheimer’s. I spoke...

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Is the brain ready for personalized medicine?

Saturday, September 7, 2013 - 9:07am

This was also published on the Robert Wood Johnson Human Capital Blog

“Prescribe the right drug to the right patient at the right time” is not a new medical practice, but when a biomarker—that is, a measure of disease pathophysiology—or a gene makes this decision, that is a radically new medical practice. The promise of personalized medicine is...

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Customer Service Comes to the Polls. The Bauer-Ginsburg Commission is up and running!

Friday, August 16, 2013 - 8:41am

UPDATE -- 16 August 2013 - The Bauer-Ginsburg Commission is up and running! Check out the website for the properly named Presidential Commission on Election Administration. has the vision of bringing a "customer service model" to the voting experience. This could well mark a break away from the contentious partisan squabbles that scuttle efforts to transform a voting experience that...

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Prometheus and Myriad -- how two supreme court rulings have freed biomarkers and genes from bondage

Tuesday, June 25, 2013 - 7:55pm

In recent decades, biomarkers and genes have become essential in diagnosing disease and assessing patients’ responses to therapy. They are the language of desktop medicine. The increasing quantitative rigor and efficiency of these tests have led to the possibility of “personalized medicine.”  Despite such progress,...

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The Assessment of Capacity for Everyday Decisionmaking (the ACED). An instrument that puts assessment into our ethics and ethics into our assessments.

Tuesday, June 18, 2013 - 9:22am

Developed by James Lai and Jason Karlawish, the ACED is useful for assessing an adult’s capacity to solve functional problems. It is especially helpful to sort out whether to respect a disabled adult’s refusal of assistance to manage their disability. You can read more about why assessing capacity matters in this Huffington Post blog post by Dr. Mark Lachs...

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Remarks delivered at the April 24, 2013 conference "Finding Humanity in Advanced Dementia," sponsored by the PNP Program at Washington University in St. Louis

Sunday, April 28, 2013 - 7:52pm

This and the other talks from the conference can be listened to on YouTube.

In one of my first substantive memories of a person with advanced dementia, I’m standing at the threshold to the room in the nursing home where my great grandmother lay. I don’t want to say she lived there because in the weeks and months after she fell from the step that led up to...

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